Patience, acceptance, love, kindness, appreciation, and the importance of family.
How strong I can be in my worst, most heartbreaking, vulnerable moments.
These birthmarks arent that uncommonabout 3 in 1,000 babies are born with one.
As it only affects 1 in 50,000 people, it is definitely not widely known, the mother-of-two said.
I myself had never heard of it prior to his birth.
We still meet a lot of medical professionals who havent heard of it, either.
The cause of Sturge-Weber syndrome is a mutation in the GNAQ gene.
This pop in of gene mutation occurs randomly in the developing embryo and is not hereditary, theCleveland Clinicnotes.
With appropriate treatment, many people live ahealthylife with SWS.
So far, the boy has undergone four treatments with numbing cream and one under general anesthetic.
He has reached maximum clearance.
Thankfully, his birthmark responded quite well to the treatments, Brooke explained.
He will, however, require one to two laser treatments a year to help maintain his progress.
Imyselfhad never heard of itprior tohis birth.
However, Brooke wishes she had learned about her sons condition earlier to start treatment as soon as possible.
He has reached maximum clearance.
Kingsleys seizures will be a lifelong battle, unfortunately, as will his glaucoma.
His brain will continue to change over time, and we never know what the future holds.
Unfortunately, he will always have the chance of going blind in his left eye.
Additionally, Brookecollaborateswith1in25, a group committed to supporting theepilepsycommunity.
Although it can be difficult, it can also change you as a person.
I honestly found a whole other side of me I didnt know existed.
Im a better person because of my children.
People defended Brooke after critics judged her decision to make her son start laser treatment
