At 46 years old, she has exceeded the average life expectancy by more than 30 years.
In her own words, she isnot even supposed to be alive.
I mean, I essentially looked like a little baby doll, she toldPeople.
I knew very early that something was different about me.
But I just wanted to live my life and be like everybody else.
Staying true to those words, Tiffany took many jazz, tap, and ballet classes in school.
When she was sixteen, doctors were surprised to find strange white splotches on her skin.
As doctors dug deeper into their familys genetics, they made the appropriate conclusions.
The third Wedekind sibling, Todd, and their father, Michael, tested negative.
Chad died about a year later at the age of 39.
I actually had a nurse tell me a couple years ago, Youre only 42, she said.
Im like Lady, Im not even supposed to be alive.
Dont go by my age.
This attention, however, also attracts haters who have been quite vocal about the creators physical appearance.
She has pics as a teenager looking healthy… Ok, well some people should just get over themselves.
Although it made for a great laugh, someone added.
You have such good energy and seems you take life with ease.
This spark is why she is known as Tenacious Tiffany onInstagram.
Theres so many people that dont live in the moment, Tiffany said.
Right now is all we have.
I just really want people to appreciate it.
Many of Tiffanys fans find inspiration in the way she chooses to live
