She passed peacefully last night, wrapped in love.
I dont know what to do with myself today.
Im heartbroken, and Im angry.
Through her videos, the influencer shared thedaily care routinesneeded to keep her daughter safe and comfortable.
Nebulizer treatments, humidifiers, and electrolyte syringes were also part of their everyday reality.
Despite the struggles, the Campbell family embraced Ellianas life with urgency and joy.
Ellianas condition worsened, with Campbell posting what would be one of her last updates.
Ellies body is slowing down, she wrote.
Were staying by her side, giving her all our love.
Thank you for being part of her journey and holding us in your hearts.
Throughout the entire process, Eliannas life became the inspiration for afundraisercampaign calledEllianas Hope for Healing.
The non-profit was founded by Jill andEddie Vedder, ofPearl Jamfame.
Sweet Ellie has made a lasting impact on my life.
This angel captured my heart from the moment I saw her story.
I prayed that this sweet child would be healed.
Now she is with her creator and free of pain, a donor wrote.
In loving memory of Elliana Rose.
You have touched so many lives in your short time here.
I am convinced that strides to finding a cure have been/will be made because of you!
I will never forget how beautiful you are, another said.
In the midst of her heartbreak, she continues to spread awareness through her platform.
There is no cure, but there is hope, she wrote.
Every child with EB deserves a future without pain.
Spreading awareness leads to research, treatments, and one day a cure.
The Campbells: I am so deeply sorry and cannot fathom your pain.
hey know you gave her the best life you could, one user said.
Fly high Elliana, youre always in our prayers.
Our heart breaks for you.
Readers interested in donating to EB Research can do so by following thislink.
Pain for her is over.
Netizens empathized with the influencer, sending their condolences
Thanks!
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