A Race Against Time: A Family’s Journey With Their Child’s Sanfilippo Syndrome Diagnosis
Logan was born in 2007 alongside his twin brother Austin. Soon after, Logan was diagnosed with Sanfilippo syndrome. As Logans mom, Noelle, described: Sanfilippo syndrome is a terminal, neurodegenerative rare disease. They suffer from seizures and movement disorders, joint pain, and have a short life. The average life expectancy is mid to late teens. The news was devastating to the whole family. We were told there was no treatment or cure....